In the last few weeks, the Ice Bucket Challenge has quite literally “soaked” the nation. Everyone from Oprah Winfrey to Justin Timberlake has poured a bucket of ice water over his or her head and challenged others to do the same or make a donation to fight ALS within 24 hours. There are many people who are complaining about the Ice Bucket Challenge because their newsfeeds are filled with “I now nominate” and “I’ve accepted!” To me and I’m sure millions of other people, it’s not about my stupid FaceBook page being filled with #ALSIceBucketChallenge, it’s more about how we’ve taken this simple challenge and transformed it into a beautiful social engagement that promotes ALS and the ALS community.
If you don’t want to pour a bucket of cold water on your head, then donate! If you don’t have any money, then put a wet suit on and do the challenge because either way you’re helping to promote for a great cause. For those of you who don’t know what the ALS Ice Bucket Challenge is or even what AlS is, visit the ALS website. For those of you who do know what it is, here are some interesting facts about the Ice Bucket Challenge and what it’s done for the ALS community!
- Between July 29 and today, August 12, The ALS Association and its 38 chapters have received an astonishing $4 million in donations compared to $1.12 million during the same time period last year.
- With only about half of the general public knowledgeable about amyotrophic lateral sclerosis (ALS), also known as Lou Gehrig’s Disease, the Ice Bucket Challenge is making a profound difference. Since July 29, The Association has welcomed more than 70,000 new donors to the cause.
- “While the monetary donations are absolutely incredible,” said Newhouse, “the visibility that this disease is getting as a result of the challenge is truly invaluable. People who have never before heard of ALS are now engaged in the fight to find treatments and a cure for ALS.” said Barbara Newhouse, President and CEO of The ALS Association.
- Currently, there is only one drug approved by the U.S. Food and Drug Administration (FDA) to treat ALS, which only modestly extends survival by two to three months. Consequently, ALS is 100 percent fatal. In addition to acclimating to the challenges that come with losing control of voluntary muscle movement, people with the disease progressively lose their ability to eat, speak, walk, and eventually breathe.
- ALS can strike anyone.
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The ALS Association’s mission includes providing care services to assist people with ALS and their families through a network of chapters working in communities across the nation and a global research program focused on the discovery of treatments and eventually a cure for the disease. In addition, The Association’s public policy efforts empower people to advance public policies in our nation’s Capital that respond to the needs of people with ALS.
Contributions further The Association’s mission to find a cure for ALS while funding the highest quality of care for people living with the disease.
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